LIST OF GOLDENHAR SYNDROME CASES ALREADY BELONGING TO THE GROUP OR WHOSE EXISTENCE IS KNOWN BUT COULD NOT BE CONTACTED YET

During the meeting that took place on 18/10/03 at the Bird Foundation in Vicenza (Italy) those parents who were present decided to elect a representative of the Group for each Italian region. One of the aim of the Group is to act upon regional level to urge the identification of Specialised Centres according to the Italian Law n. 279/01, and to locally represent the Group by the Health Facilities (Aziende Santarie) thanks to the representative. Another aim is to support Goldenhar families, to contact other Goldenhar families to involve them in the Group’s activities.

LIST OF REGIONAL REPRESENTATIVES

To get in touch with the "regional representatives", please, send an e-mail to the following site address: mail@goldenhar.it. Write the name of the "regional representative" of the Italian region you are interested in on your e-mail "object" line. Thus your message will be automatically sent to the personal account of the requested "representative".