ADRESSES ET SITES UTILS
ttp://fmfpc.altervista.org/portale.htm
http://www.malattierare.iss.it
http://www.malattierare.iss.it/NEPHIRD
http://www.plastsurg.mas.lu.se/op/msb/mikroti/mikroti_s.html
http://www.globalmednet.com/do-cdrom/Clinical/ca001.htm
http://www.globalmednet.com/do-cdrom/Clinical/MandLeng/Diner/dn001.htm
http://www.dfg.net/chpedtv/forum/messaggi/2918.htm
www.ao.pr.it/salute/reparti/maxillo-facciale.htm
http://groups.yahoo.com/group/AtresiaMicrotia
ISTITUTO MARIO NEGRI
Centro di informazione per le Malattie Rare
Villa Camozzi
24020 RANICA (BG)
e.goldenhar@aol.com : e-mail della figlia del Dott. Goldenhar (U.S.A)
http://www.whonamedit.com/doctor.cfm/2048.html
Goldenhar Syndrome Research & Information Found
P.O. Box 61643
St. Petersburg, FL 33714
813-522-5772
E-mail:76232.633@compuserve.com
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?cmd=entry&id=164210
http://www.ncbi.nlm.nih.gov/pubmed/
CENTRO DE OFTALMOLOGIA BARRAQUER
MUNTANER, 314
08021 BARCELONA ESPANA
tel. (0034) 932095311
fax (0034) 932002469
e-mail: www.co-barraquer.es
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville MD 20852
Phone #: 301-897-5700
800 #: 888-321-2742
e-mail: actioncenter@asha.org
Home page : http://www.asha.org
Anophthalmia/Microphthalmia Registry
C/O Genetics
Philadelphia PA 19141
Phone #: 215-456-8722
800 #: --
e-mail: schneida@einstein.edu
Home page:http://www.angelfire.com/mi/microphthalmia
Birth Defect Research for Children, Inc.
930 Woodcock Rd
Orlando FL 32803
Phone #: 407-895-0802
800 #: --
e-mail: abcd@birthdefects.org
Home page: http://www.birthdefects.org
Congenital Heart Anomalies, Support, Education, & Resources
2112 North Wilkins Road
Swanton OH 43558
Phone #: 419-825-5575
800 #: --
e-mail: chaser@compuserve.com
Home page:http://www.csun.edu/~hfmth006/chaser
EA/TEF Child and Family Support Connection, Inc.
111 West Jackson Boulevard
Chicago IL 60604-3502
Phone #: 312-987-9085
800 #: --
e-mail: info@eatef.org
Home page: http://www.eatef.org
Ear Anomalies Reconstructed: Atresia/Microtia Support Group
72 Durand Road
Maplewood NJ 07040
Phone #: 973-761-5438
800 #: --
e-mail: atresiamicrotia-subscribe@yahoogroups.com
Home page: N/A
International Children's Anophthalmia Network (ican)
5501 Old York Road
Philadelphia PA 19141
Phone #: 215-456-8722
800 #: 800-580-4226
e-mail: aemcgenetics2@hotmail.com
Home page: http://www.anophthalmia.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-428-7100
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page:http://www.marchofdimes.com
NIH/National Eye Institute
Building 31 Rm 6A32
Bethesda MD 20892-2510
Phone #: 301-496-5248
800 #: --
e-mail:2020@nei.nih.gov
Home page: http://www.nei.nih.gov/
NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: nhlbiinfo@rover.nhlbi.nih.gov
Home page: N/A
National Association for Parents of the Visually Impaired
P.O. Box 317
Watertown MA 02472
Phone #: 617-972-7441
800 #: 800-562-6265
e-mail: napvi@perkins.pvt.k12.ma.us
Home page: http://www.spedex.com/napvi
National Kidney Foundation
30 East 33rd Street
New York NY 10016
Phone #: 212-889-2210
800 #: 800-622-9010
e-mail: N/A
Home page: http://www.kidney.org
The Arc (a national organization on mental retardation)
1010 Wayne Ave
Silver Spring MD 20910
Phone #: 301-565-3842
800 #: 800-433-5255
e-mail: info@thearc.org
Home page: http://thearc.org/
http://www.globalmednet.com/do-cdrom/Clinical/ca001.htm
1 http://www.faces-cranio.org/Disord/Hemi.htm
2 http://www.faces-cranio.org/Disord/Golden.htm
3 http://members.tripod.com/~BarbMiles/
4 "http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Goldenhar%20Syndrome%20
5 http://www.sos.se/smkh/1999-29-094/1999-29-094.htm
6 http://www.erlanger.org/craniofacial/book/hemifacial/hemifacial1.htm
http://www.goldenhar.org.uk/ uk
http://groups.yahoo.com/group/goldenharadults/
http://www.indiana.edu/~pietsch/goldenhar.htmlUSA
http://www.worldcf.org/fc_2.html
http://www.faces-cranio.org/Disord/Golden.htm
http://www.cafamily.org.uk/Direct/g27.html
http://deafness.about.com/cs/featurescauses/a/goldenharsynd.htm
http://www.icomm.ca/geneinfo/goldenhar.htm
http://www.hon.ch/HONselect/RareDiseases/FR/C05.116.099.370.231.576.410.html
http://www.deafblind.com/goldenha.html
http://www.familyvillage.wisc.edu/lib_gold.htm
http://home.att.net/~jnozum/Goldenh.htm
http://www.wa-eyemd.org/Goldenhar's%20syndrome.htm
http://www.atoute.org/dcforum/DCForumID5/8798.html
http://news.bbc.co.uk/1/hi/health/medical_notes/g-i/1855282.stm
http://my.webmd.com/hw/health_guide_atoz/shc29gol.asp
http://www.thefetus.net/page.php?id=418
http://www.uic.edu/depts/doms/rounds/rounds-36.html
http://omni.ac.uk/browse/mesh/C0018037L0018037.html
http://www.chu-rouen.fr/navimesh/G/navigoldenharsyndrome.html
http://www.chu-rouen.fr/ssf/pathol/goldenharsyndrome.html
http://www.vulgaris-medical.com/v1/?p=index_fiche&id_article=2119